"I am a traveler journey from this life to the next on this trip and I need a place to be cared for and supported and can be myself "(N. Hadlock)
The Hospice, run by a non-profit social cooperative of the same name, in collaboration with AUSL of Reggio Emilia, offers free assistance and support to those who are in the last stage of oncological/non-oncological disease as well as to their families. The House wants to be an integrated help to home assistance and aims to offer hospitality for a limited period of time. The service was institutionally accredited by Emilia Romagna Region.
The House has 12 single rooms, each with bathroom facilities. In each room there are:
- a sofa-bed for family members who want to stay with their relative;
- a cordless phone with an external direct line,
- internet connection,
- a TV set,
- a mini-fridge.
The House is a two-storey building:
- On the ground floor there are: a water dispenser, a hot-drink vending machine, a kitchen where families can prepare personal meals and a dining room for family and patients' meals. Meals are prepared by our cooks; menus are varied and personalized .
- On the first floor there are: a chapel, a library, a living room with a TV set and a DVD player, a video collection and a play-area for children. On Sundays the Holy Mass is celebrated in the old church Madonna dell'Uliveto at 5 p.m.
The Hospice houses patients in the final stage of oncological disease as well as some non-oncological cases for which evaluation of the AUSL Organization Home Assistance Head and of a doctor of the team is requested. Admission requirements are the following:
- All treatments (chemiotherapy, radiotherapy etc.) are for palliative purposes only;
- Difficulties in symptom control and palliative treatment at home ;
- Autonomy inferior or equal to 50% according to Karnofsky scale;
- Impossible home care owing to absence of family support or temporary family relief;
- Acceptance of general principles of palliative care by patient and family;
- On first admission patients must not be in agony ;
- Maximum estimated life expectancy 6 months.
How we deal with a waiting list:
Once patients are considered eligible, they enter a waiting list according to these fundamental factors :
- Home patients come before patients in hospital or other local structures;
- Serious uncontrollable symptoms, first of all pain
- The age of patients , with priority to young ones. In a family with a young oncological patient, the experience is very traumatic and requires large support, particularly psychological, in order to avoid pathological mourning;
- Patients without family support come first
- Patients in financial need come first
- On account of worsening clinical conditions former patients are easily admitted again
- Priority is given to residents in the province of RE compared to non-residents.
Patients can be included in the list by:
- Family doctors
- Hospital doctors
- Family nurses
- It is necessary to fix an appointment with the Coordinator or the Social Assistant for a preliminary interview and a visit of the House;
- It is necessary to fax the assistance form filled in by a family doctor for home patients or by the doctor of the structure having previously called the Coordinator or the Social Assistant;
- Possible insertion in the waiting list.
- Admission request must be authorized by the Manager of the “Centro Unico di Cure Domiciliari” of the residential Sanitary District of Reggio Emilia AUSL.
LENGTH OF STAY IN HOSPICE AND DISCHARGE
Admission to Hospice is not permanent, but temporary. A 25-30 percentage of patients are discharged in stabilized conditions.
- For treatment and/or difficult home-control of symptoms , the period in Hospice can be up to 4 weeks. Pathology, symptoms and their possible olution will be taken into consideration.
- Admissions for family relief may last from 20 days up to a maximum of one month in situations that comply with our eligibility criteria.
- Family relief periods can be repeated if recurrent situations are consistent with entry conditions and in accordance with the criteria of the waiting list.
If a patient returns home, he/she can be accepted again with facilitated procedure and in compliance with the waiting list rules.
At the end of their stay, patients are kindly requested to anonymously fill in an appreciation questionnaire about the service. The questionnaire is to be posted into a box located in the entrance hall.
Copies of certificates and medical records may be requested from our offices according to the appropriate procedure.
USEFUL INFORMATION FOR GUESTS AND FAMILIES
The house is open for family visits from 7 a.m. to 8 p.m.
Welcoming and multidisciplinary assistance.
Patients can be helped by a family member night and day as there is a sofa-bed in every room . Patients can take items they like in order to be comfortable in their rooms. Small pets are allowed after permission from the manager. DVD reader and headphones for TV or music are available on request.
The family can buy meal vouchers from the reception.
Free assistance to patients includes:
- Accurate monitoring of each symptom, especially pain;
- Personalized treatment, carried out by a multidisciplinary team made up of palliative care doctors, nurses, health workers, psychologists, physiotherapists, shiatsu and music therapists, religious ministers.
How to reach the Hospice
For families and care takers with no personal vehicles, a free connection to the Hospice is offered by Croce Verde of Albinea from No. 1 bus terminal in Via Grandi (in front of Scuola Media of Albinea). The service must be requested one day in advance by calling 328.9860877 (ask for information form).
The Service is accredited by the Health Agency of Emilia Romagna. The continuous improvement in the quality of our service is guaranteed not only by the high professional standards of the operators, but also by a thorough development of the internal Quality System, according to regional indications.
The main objective of the team's work is the achievement of the best quality of life, as allowed by the disease. For this purpose the team periodically meets to evaluate the achievement of this goal. Furthermore, patients are encouraged to fill in a questionnaire evaluating the perceived quality of life (POS - Palliative Care Outcome Scale).
Comfort and personalized care for patients and families
Particular attention is paid to some key moments:
- Assistance planning
- Possible protected discharge
- Mourning care
On reception and within 48 hours after arrival the patient is informed about the running of the House and as much information as possible is collected to draw a personal care plan. A week since admission and approximately twenty days later there will be a meeting with members of the family and the multidisciplinary team of the House (including the doctor in charge of treatment, nurse and psychologist) for an overall evaluation of care problems (each operator is in any case bound to listen and counsel patient and family).
On discharge all services of the local network are activated in order to ensure care continuity. A care continuity report with the most relevant clinical issues is drawn up for the medical general practitioner and/or the home nursing service. If faced with a mourning process, the family can ask the team of psychologists for individual meetings as a support.